Parallel session: Information and technology in the Health system: Initiatives and good practices
Design of innovative practices for a synergistic attention of chronic diseases in the health and social environment with the assistance of ICTs. Rosetta project. Emilio Herrera Molina
Increasingly, more patients develop chronic diseases, which pose serious problems related to assuming leaving with them, make their treatment economically sustainable, etc.
Different needs depending on whether you’re a patient, a professional, a technician, or a member of a directive board.
The Rosetta project will be applied to three chronic diseases (diabetes, brain-vascular accident, chronic obstructive lung disease) and link a catalogue of technologies with treatments that used those technologies in one of the selected diseases. E.g. someone used video-conference to do tele-assistance for diabetic patients. The idea being to introduce disruptive — while tested — new ways of interaction and assistance.
Indeed, in a world with more disabled people (a result of our longer life-expectancy) this project can bring technologies closer not only to chronic patients but to a larger group of people.
Digital literacy and main initiatives in Open Access in Health science Jorge Veiga de Cabo
Digital literacy: much more than reading or writing, based in a functional approach. Skills, knowledge, attitudes to be fully functional in the Information Society.
In relative terms, we’re witnessing a (though slow) balancing in the international contribution to open access repositories in health-related subjects. See, for instance, the Directory of Open Access Repositories (OpenDOAR).
Quality management: ICTs as cooperation strategies Pedro Sa Moreira
From e-Health, the patient is reactive, to i-Health, the patient is proactive.
Quality management should lead to cooperation and be able to catalogue best practices, so to put them publicly available for these upcoming e- or i-patients.
Practice sharing should, of course, be based on open access repositories fed by institutions and individuals (professionals).
Quality management and knowledge management are two sides of the same coin.
A project for a Health Virtual Library for international cooperation Carmen S. Ardila; Rosa Trigueros Terrés; María García-Puente Sánchez; Juan María de la Cámara de las Heras
Ayudsan, a platform oriented to make development cooperation programmes in Health easier, mainly fed with content by volunteer contributions.
Information in the site:
Training, including e-learning tools, a directory of professionals and trainers, etc.
Travelling protocols
Collaboration section, so that NGOs can interact and network amongst themselves or with individuals (e.g. volunteers)
Communicaton: f2f, virtual, multichannel, etc. enhanced by the site.
Virtual library
International collaboration and good practices in the management of complex chronic diseases through Web 2.0 tools: Observatorio de Prácticas Innovadoras en el Manejo de Enfermedades Crónicas Complejas (OPIMEC). Diana Gosálvez Prados; A. Jadad Bechara; D. Gosálvez Prados; AJ. Contreras Sánchez; A. López Ruiz; F. Martos Pérez; J. Venegas García; E. Peinado Álvarez; A. Cabrera León
Why: chronic diseases are increasing and, due to their nature, pose severe challenges to patients, professionals, families, etc. Many of these challenges can be addressed through collaboration, and here is when Web 2.0 tools come to the rescue.
The OPIMEC (Observatory of Innovative Practices in handling Complex Chronic Diseases) gathers experiences in the field in a collaborative way. The platform is open and aims at helping people to share quality information, enable networking between professionals, etc.
Besides what’s on the website — impressive, BTW — the collaboration on the platform has produced books, directories of experts, etc.
Parallel session: Trends and advances before the digital divide: assessment systems and good practices Moderator: Concepción Colomer Revuelta, Subdirector at the Oficina de Planificación Sanitaria and Director del Observatorio de Salud de la Mujer del Ministerio de Sanidad y Política Social
Digital and informational divides in a context of digital, cultural, cognitive and generational convergence Marcelo D’Agostino, Consultant in Knowledge Management, Organización Panamericana de la Salud
Marcelo D’Agostino believes that the digital digital will shrink, necessarily, as the Internet won’t make steps backwards [he seems to forget that the digital divide is actually widening, especially if we take into account the quality of access, namely, broadband access, and what you can or cannot do with that different quality of access].
Advise to bridge the digital divide:
Don’t be intimidated by technical jargon
Don’t be afraid of technology
Nobody is an expert in everything
Trust first your capacity and then apply technologies
Be careful where you look for information
Benefits of ICTs for Public Health: a better link between patients and professionals; better and life-long training.
Open access to health and medical information: a challenge before the digital divide Helena Martín Rodero, Head of the Sección Bibliotecas Biosanitarias de la Universidad de Salamanca
Raghavendra Gadagkar: open-access more harm than good in developing world (published in Nature, comment by Peter Suber) stating the rich world patronising the poor world, in the sense that rich ones might be more interested in poor ones reading rather than publishing.
We are witnessing a crisis in the system of scientific diffusion, that has lead to the creation of the Open Access movement and several international declarations to foster scientific publishing in open access journals (gold access) or scientific self-archiving in open access repositories (green access).
Open access is compatible with peer-review, professional quality, prestige, preservation, intellectual property, profit, priced add-ons and print (originally in Open access to the scientific journal literature, by Peter Suber.
Access to knowledge will necessarily help to bridge the digital divide, and open access publications and repositories is a way to enable a better access to knowledge.
Web 2.0 and Medicine Dídac Margaix Arnal, Librarian at the Universidad Politécnica de Valencia
New generations (digital natives) have been born with new technologies and these are no strange to them. Have different skills towards technology and information, which they manage in different ways.
We might be in an age similar to the Renaissance, where technology feeds cultural and social change, and culture and society feed technological change.
Three kinds of Web 2.0 sites
The web as the platform: use the web instead of the desktop (e.g. Zoho)
Remix the web: use the web to mix different content (e.g. Google Maps)
The social web: it is users what counts, not visits. Users add value to the site (e.g. YouTube)
Medicine 2.0: use of a set of web tools by health professionals applying the principles of open source, open access, etc. It is different from e-Medicine, that is applying ICTs in health issues. There has been an inflexion point that has put humans into technology, from just ICTs to the dimension of community. It is a matter not of technology but of participation.
Some factors:
“Suppormediation”: support and mediation by non-professionals (in Spanish: Apomediación)
Collaboration
Transparency
There increasingly are websites that provide health information on the Internet. We should prescribe more information than pills (or, at least, as much information as pills).
Summing up: new agents, new tools, collaboration, personalization, training.
Internet and Health David Novillo Ortiz, Agencia de Calidad del Sistema Nacional de Salud. Ministerio de Sanidad y Política social
Related to health, increasingly people get their information from the Internet and less from TV, and more from blogs. In general, e-mail, search engines and social networking sites have entered with strength into the information landscape.
Search for health information in the Internet has gone from 19% in 2003 to 54% in 2008 (Spain, % of total Internet users). There is a gender gap where women score 10 points higher than men, probably due to their role as the person at home that cares for the family members.
In April 2007, the same search terms in 4 different search engines produced only 0.6% of overlap (only 0.6% of all results were the same in the 4 search engines). We should be careful about that, as the information that search engines produce is, by any means, the same one ever.
Indeed, we trust more the people we know that the ones we don’t, that’s why Google Social Search might be adding a lot of value as it will bring personal context to people’s searches.
On the other hand, we can access certified/verified health websites whose information is backed by the reputation of the institutions that publish those websites. E.g. excelenciaclinica.net, a metasearch engine that crawls the best health websites in Spanish.
Parallel session: Trends and advances before the digital divide: assessment systems and good practices Moderator: Ana María Morales García, Professor at the Universidad Carlos III de Madrid. Subdirector of the Instituto Universitario Agustín Millares
Project Andalucía Compromiso Digital. A volunteering project to bring ICTs to the andalusian society Miryam Jiménez
After deploying telecentres through the Guadalinfo project, some people would still not access the Internet. Among other reasons, lack of someone to guide them through would be a major issue. Thus why Andalucía Compromiso Digital, so that volunteers would accompany people on their way towards the Information Society. The volunteering part is, undoubtedly, the new and important part in this digital inclusion project.
Digital guiding is not a technical service, a course, a workshop, or a visit. Is the way volunteers offer their own help and knowledge so that participants in the project approach ICTs.
Guiding can be accessed both at telecentres (Guadalinfo Centres, ICT Centres, libraries) and at home.
The volunteer, more than a technologist, is a person that tries to find out the needs of the user and humanizes the technology, raising awareness, improving skills.
And not only citizens, but private organizations also take part in the project. Not only by sponsoring, but sharing the goals, contributing to the diffusion of the project and, especially, by participating with corporate volunteering.
The project also has some shared resources on a website: training resources, intranet for the volunteers, coordination site for the managers, a call-centre, etc.
More than 1,000 volunteers that have performed more than 34,000 guiding actions.
Good practices in Technological Literacy to bridge the digital divides from Extremadura to Latin America Evangelina Sánchez
Main goals of the initial plan in Extremadura (Spain, late 1990s): connectivity in all towns and technological literacy for all citizens. Based in free software and training.
Next step: technological cooperation with Latin America, sharing the model based in technological literacy and free software as a locomotive for development. Main tools have been workshops and training sessions which take place online (first with Claroline, now with Moodle).
7 basic gnuLinEx (their own Linux distro) workshops, 2 advanced on gnuLinEx and 2 training-for-trainers courses, followed by more than 1,000 in many countries in Latin America.
Analyses of Intelligent Community Centres as a public policy to bridge the digital divide in Costa Rica. Elena Jara Gómez
34% of computers at home, 14% of homes connected.
Intelligent Community Centres: labs placed in strategic communities to foster inclusion, managed by local institutions and coordinated by the Ministry of Communications, Industry and Technology. Goals:
universal access,
achieve higher quality of life by means of ICTs,
strengthen citizen participation,
empower citizenry with ICTs.
Indeed, e-government services will become the driver through which to catalyse the effective usage of ICTs and actually engage in an active citizenship.
Media treatment of the digital divide in Spain. An analysis of its reference in mass media. María Cristina Pinto Arboleda.
The media have been transforming the language used to refer to the digital divide, the lack of access to ICTs, etc. But langauge should be homogeneous so that decision-taking happens on a common ground. So, international reports and local newspapers were analysed to map the different concepts around the phenomenon of the digital divide. Indeed, along with the concepts also initiatives to legitimize certain approaches were also analysed.
Initially, the term was about digital access, while now it is a much more complex term, not as much as related to a tool, as with empowerment.
Methodology strongly relying on mass media communication, political communication, discourse analysis, etc. Some of the most interesting topics around the treatment of the digital divide are related with advertising or with myths and metaphors.
Three main groups: Related with ICTs, Related with technologies in general, Related with rights in general. And also related with the structure, the infrastructure and the superstructure.
The term digital divide was related to technological infrastructure; development; exclusion; and the Information Society. And quite often, it was dealt as a very generic concept, without details of the context.
Normally, the relevance of the public factor (e.g. the government) was overwhelming. This meant that the message comes in a quite top-down manner and with lack of debate. It is a very superstructural discourse, very ideological, without practices or applications.
Building a concept of the Digital Divide: Equipment + development + modernization = (- social exclusion) and the Information Society.
Towards a comprehensive model of the Digital Economy Ismael Peña-López
Spanish telecentre portals in 2009: new paradigm for social inclusion Ana Mª Morales García; Belén Pérez Lorenzo; Fátima García López; Mª Teresa Monje Jiménez
Hypothesis: telecentres are not only educational centres, but drivers of change and progress. What are the characteristics of these telecentres and their services? How to assess them?
Create a set of indicators about the usage of services in telecentres (including all kind of public access points to the Internet).
Before 2002, telecentres last 2 o 3 years maximum, as that was what funding last. From then on, sustainability was taken into account so that they could be established for the long run. Telecentres in Spain skyrocketed from circa 75 in 2002 to more than 6500 in 2008. But there are 14 different telecentre networks in Spain. Why not a single one? There is, nevertheless, a Community of telecentre networks. And the Spanish government is diffusing a catalogue of possible services that telecentres can offer.
This catalogue will be used to build a set of indicators to assess the performance of telecentres, especially in issues related with usage and grouped in categories: e-Administration, e-Learning, e-Banking, e-Health, e-Commerce, internet and Technology, information and services for the citizen, search of information, jobs and employment, etc.
These indicators have also been grouped according to performance criteria: availability, adequacy of services for the user, relationship with other organizations, etc.
Parallel session: Web 2.0 Applications and Access to ICTs in Information Systems Moderator: Belén Pérez Lorenzo, Consultant and Professor de la Universidad Carlos III de Madrid
Development and application of a blog to publish content on the net and communicate for senior users Fausto Sainz de Salces; Guillermina Franco Álvarez; Antonio Borondo Cobo
Goal: test, from a human-computer interaction (HCI) point of view, how such a blog should be designed and built so to match specific characteristics of senior users. The end goals being: foster communication amongst elder people, train digital competences, fight the digital divide.
Aspects to improve:
Colors need to be adapted to the user. Not only to their physical needs, but also to their attitudes and feelings.
Some concepts with which most users are familiar with, have to be explained to new users or to other kinds of users
Towards the library 2.0: the project of the UC3M library. Francisco López Hernández
How to turn a passive (library) user into an active one.
The Library has to be present in the spaces of the students, but without interfering in their lives.
Access and usage of ICTs in enterprises in Costa Rica Alejandro Rodríguez Solís
Enterprises see ICTs as ways to support training and improve decision-taking. But most of SMEs entrepreneurs are digitally illiterate and are not even aware of the potential benefits of ICTs (not to mention using them).
Goal of research: find out reasons of ICT adoption. Based on a survey to SMEs in Costa Rica, following the guidelines of the OSILAC.
In general, most enterprises have computers, access to Internet and LAN, though the penetration decreases as the size of the enterprise does. Intranets, extranets, wifi access, use of e-commerce (to sell and buy) and other issues are less and less present in enterprises in Costa Rica.
Nevertheless, there is a major acknowledgement that ICTs have eased communication with customers and providers and have had a positive impact on sales or on cutting costs down.
Consclusions:
digital divide between big enterprises and SMEs;
in general, all enterprises are late adopters of technology in many issues;
urgent need for research on the impact of ICTs on the enterprise so to raise awareness.
Economic and political factors of the digital divide Sonia Sánchez-Cuadrado; Jorge
Morato Lara; José Antonio Moreiro González; Vicente Palacios Madrid
We tend to think that the basis of the digital divide is economic, a matter of income. But there are many initiatives to bridge the digital divide: search engines, free software, automatic translators, the Wikipedia itself, open access to educational resources (e.g. OpenCourseWare), etc.
Of course, it is true that wealth and education are determinant for Internet access. But there also exists a cultural divide that comes from a lack of a certain level of education, not speaking English, etc.
There are, luckily, plenty of international initiatives to foster content creation and content sharing. Notwithstanding, other initiatives are just going the opposite way: micro-payments to access digital content, illegal downloading of copyrighted content (not judging whether is it a good or a bad thing to do, but certainly contributing to the digital divide), censorship or self-censorship, manipulation of the public opinion, spam, credibility of websites, certain criteria to award grants, etc.
Conclusions: a digital divide due to socioeconomic and cultural reasons; nationalist and business policies that negatively affect the digital divide.
Solutions: multinational initiatives and bring credibility to the content that resides on the Web.
Difusión y reproducción digital de obras de arte por medio de bibliotecas virtuales y
consecuencias de una revolución cultural Ilia Galán
Factum Arte clones works of art, hard (if able) to distinguish from the original piece. In a sense, what happened with digital products could be happening in real/analogue products, putting into struggle e.g. museums. Dilemma: enable the diffusion of culture through perfect copies, or caring about the originals and their holders? Are we universalizing culture or trivializing it?
The good thing about digitizing the original is that (a) it can be reproduced with highest quality (b) it can be stored at lowest cost by just keeping the digital copy (c) it can be recovered from a backup in case of destruction of the original.
On the other hand, the drawback is that these technologies would be expensive and somehow help to increase the digital divide.
Los sistemas de gestión de contenidos como generadores de sinergias y redes de
colaboración: relato de dos experiencias peruanas Luis Miguel Arias Martínez;
Carlos Vílchez Román
Libraries 2.0: tools to bridge the digital divide Belén Pérez Lorenzo; Ana
Mª Morales García; Mª Teresa Monje Jiménez; Fátima García López
[Pérez introduces the concept of the web 2.0]
Why web 2.0 applications can bridge the digital divide? How are they being used by libraries?
Free; low cost to participate; easy to manage; the web as the platform; accessible through any computer connected to the Internet; independent from proprietary software; always up-to-date (perpetual beta).
Web 2.0 apps are collaborative and participative; new models of usage; free and open knowledge; used by digital natives.
Plenary session: Social Impact of Technologies Moderator: José Antonio Moreiro, Dean and professor at the Universidad Carlos III de Madrid
Spanish and the Digital Divide Jesús Jiménez Segura, Director of CIDIC, Centro de Investigación y Documentación of the Instituto Cervantes
Beyond phisical access, language is a major issue to be able to engage seriously in the Information Society.
Undoubtedly, political systems — and citizen freedom — have an important impact on the access to the Internet. That might be one of the reasons Spanish is increasing its presence on the Net despite Chinese being spoken by much more people around the world.
But it is also true that while freedom to access content (e.g. P2P networks) allows for a higher access, it also puts some stress on the sustainability of the whole system. So, there is a trade-off: the more free access to digital content, the better for quick adoption; the more access to content is free, the more difficult to stablish sustainable business models.
On the other hand, as visibility is so important always but specially on the Internet, many people migrate form their original mother tongues towards English so that to make themselves accessible to a broader public. This, of course, plays havoc in trying to establish a language on the Internet and provide its speakers with quality digital content.
Security as a digital segregation factor Arturo Ribagorda Garnacho, Catedrático de Ciencias de la Computación e Inteligencia Artificial de la Universidad Carlos III de Madrid
Functional literacy: how to effectively use the Internet. Despite the zillion advantages, some drawbacks due to the Internet:
Unemployment? Some sectors negatively affected by automation, etc.
Isolation?
Insecurity?
When there’s insecurity, there’s fear and lack of adoption. For instance: almost 40% of people are afraid to use their credit card number online or 47% to do bank transactions; 70% of people think that leave comments on the Internet enables third parties to spy one’s lives; 60% feel there is no privacy on the Internet; 75% feel afraid of the Internet in general and their data scattered around.
INTECO measures security in Spain. In their 2008 survey, most people use anti-virus software, firewalls, anti-spyware… but the problem is that this software needs updating: most people install it for the first time (or just comes installed with the new computer) but never updates, which makes the software totally useless.
How to foster the Information Society from a security point of view:
Affordability of equipment
Attractive online services
Basic citizen training
Confidence in technical processes
Still, people get information from the Internet but interaction rations drop drastically, reasons being, most of them, related with fear of the Internet: security, doubting what is being bought (in the case of e-commerce), not clear identity of the issuer of information or the online service, etc.
Managing Content Juan Beitia Gorriaran, Especialista en gestión de contenidos, industria y mercado de la información. Baratz, Servicios de Teledocumentación S.A
In a world where everyone can publish content, Universities and Libraries should educate people to understand all that’s found on the Internet. Indeed, they could even manage that content and sort it in some way.
In Spain, libraries have gone through a deep process of modernization, automation and technological advancement, led by to librarians, who usually are technology lovers.
[Beitia details the advancement of automation of most of the 3,842 libraries in Spain]
The Future Web 3.0 and its Social and Technological Impact. The convergence of the Web 2.0 and the Semantic Web Luis Joyanes Aguilar, Catedrático de Lenguajes y Sistemas Informáticos de la Facultad de Informática de la Universidad Pontificia de Salamanca
Nova Spivak divides the evolution of the web as follows
Q: What is the hazard of collusion or monopoly practices on the Net? Joyanes: Huge, indeed, and increasing. Jiménez: we should balance the power of the NTIA or the FCC in the US with international organizations like the ITU or the IGF.
Q: What happens with the long life of data on the Internet? On the other hand, if technology evolves quickly, can we lose information? Ribagorda: increasingly, international institutions are trying not only to agree on standards (e.g. to enable interoperability) but also that these standards are open enough so taht they can interact with past standards and make possible that future standards interact with them.
I have been accepted two communications which I am presenting tomorrow within the track Organizations and institutions before the digital divide: model development and good practices. The two communications will be both presented during the event and published in the respective proceedings, and they belong to the research I did for my PhD Thesis. The materials for the presentation and the full text of the communications, in Spanish, follow below. For other materials related to my PhD Thesis, please browse the phd tag (http:/ictlogy.net/tag/phd).
Hacia un modelo integral de la Economía Digital
[Towards a comprehensive model of the Digital Economy]
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